Are you interested in helping to improve health and care research for kidney disease?

This is your opportunity to give your feedback on a clinical trial for IgA Nephropathy.

About this Opportunity

The National Institute for Health and Care Research (NIHR) is pleased to share an opportunity for members of the public who have experience of IgA Nephropathy to be involved in the shaping of a commercial clinical trial.

We are working with a company to help them improve their planned research. Our partner is looking for people who are willing to read through draft documents that have been prepared for people interested in taking part in the study and giving feedback on how clearly the information has been written and presented. This will help them to design a study that is focused on the needs of the participant, their family, and their community.

Who is the NIHR looking for?
This opportunity is for eight adults (aged 18 or over) who live in the UK.
Have lived experience (as a patient or carer) of IgA Nephropathy.
Can access and use a word processing programme such as Microsoft Word to read the documents and fill out a feedback form.

What do I have to do?
If you are interested in taking part, please complete the application form linked below. If you are selected for the activity, you will be asked to read the draft documents and share your thoughts on how clearly the information is presented.

We want to make sure that the materials are:
Informative
Accessible
Engaging and fit for purpose
Using language that is appropriate for potential participants and carers
The NIHR PECD Team will support you throughout this process and provide any information or guidance you may need.

How long will it take?
We expect it to take 2-3 hours of your time to read the documents and complete the feedback forms. You will begiven 10 days to complete your reviews and send back your comments.

Payment
The NIHR, on behalf of the company we are working with, will reimburse you £55 for your participation.

This will be paid by bank transfer, usually 6 weeks after the activity has taken place (although it can occasionally take a little longer).

Important Information on Tax & Benefits:
You can find detailed information about payment for research involvement activities, and the impact this may have on your tax and national insurance here:
https://www.nihr.ac.uk/payment-guidance-members-public-considering-involvement-research

What happens after the review?
The NIHR PECD team will write an anonymised report for the company, summarising the feedback from all the reviewers. The company will use this report to make changes to their study information sheets based on the group’s feedback.

A few months after the activity, the PECD team will send an update from the company to all contributors detailing how the insights were used to improve the study information.

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